Hope with strength

Gabriel Low

My name is Gabriel Low. I am 17 years old, and I am a competitive triathlete, a singer, and a scientist, among other things. I was born in Colombia, raised in Alaska, and now live in Hilo, Hawaii. All of these things are a part of my identity, and they are definitely not unimportant, but there is one quality of mine that I feel, especially now, is more important than the rest: I am someone affected by a rare chronic disease.

I was diagnosed with hypokalemic periodic paralysis (HKPP) when I was 6 years old. HKPP is a genetic condition characterized by unstable potassium levels in the bloodstream, resulting in muscle weakness and, at times, paralysis. In order for me to lead a near-normal life, I was prescribed numerous medications and dietary restrictions, which I have had to follow religiously throughout my life. These restrictions include a low-salt, low-sugar diet, as well as restricting excess carbohydrates. As a child, living like this was no small challenge.

"I want to make a difference in the world of rare diseases. I want to give hope to others like me."

Now, 11 years after being diagnosed with HKPP, I have learned to manage the disease, function as an ordinary person, and even do extraordinary things. Other than medication and a low-sugar, low-salt diet, I have learned about one more major thing that helps me to function: exercise. Consistent exercise. When I started training for triathlons about one and a half years ago, I noticed a huge change in my ability to “cheat” on my diet. I could start to go out and get ice cream without having to suffer the major consequences that I was used to (slight weakness and overall decrease in functionality) afterwards. I didn’t make the connection with exercise until about a month later, when I took a week off from training. Then, I noticed that HKPP had come back and had started to affect me again, and I was unable to eat as I pleased. However, as soon as I returned to training, I immediately started to notice improvements. From that moment on, I have not stopped exercising. And that consistent exercise has led to something else that has become a large part of my life: competitive triathlon.

In the months before the race, I have decided that I want to take a stronger stance as someone with a rare disease. I have decided to use my strength that I have been granted now for something more than just racing. I want to make a difference in the world of rare diseases. I want to give hope to others like me. I want to raise awareness, to promote support, and advocate increased understanding for rare diseases, in particular, Primary Periodic Paralysis, or PPP. To do this, I am riding across the country and sharing my message with all I can along the way.

Learn more about Uncovering Periodic Paralysis here