Invitae believes that genetic information is more valuable when shared. Patients can help advance important clinical research by registering with one of the groups listed below. These patient registries seek to better understand the associations between genes and disease.
Participation is completely voluntary, and Invitae will never share patient-specific health information with these groups without permission.
If you represent a registry or research groups interested in partnering with Invitae, please contact us.
The Prospective Registry of Multiplex Testing (PROMPT) is a research registry for people who have had multi-gene panel testing for hereditary cancer. It’s a collaborative effort across academic institutions and commercial labs to answer important questions about genetic tests. Joining will help researchers quickly learn information that will help develop the best way to manage risks associated with alterations in cancer susceptibility genes.
GenomeConnect is the patient participation portal for the ClinGen Resource, a National Institutes of Health (NIH)-funded project that is building a genomic knowledge base to improve patient care for all hereditary conditions. GenomeConnect was developed as a tool to connect people who are interested in sharing de-identified genetic and health information to improve the understanding of genetics and health.
ICARE is a registry-based research study and represents a clinical-research-community partnership among medical practitioners, researchers, and members of the general public. The common goal is to improve the lives of patients and families at risk for inherited cancer susceptibility.
Affiliated with the Facing Our Risk Empowered (FORCE) patient advocacy group, the ABOUT Network is for patients with an alteration in any gene associated with hereditary breast and ovarian cancer (HBOC) syndrome. The ABOUT Network’s goal is to enroll as many Americans as possible, including those with HBOC and unaffected carriers, into research studies to improve health outcomes.