Patient Insights Network

Genetic information is more
valuable when shared

More than a traditional registry

A Patient Insights Network (PIN) is much more than a traditional registry. It’s a powerful tool for collecting, curating, coordinating, and delivering patient data.

So far, we’ve established PINs for more than 400 specific medical conditions—and counting. Our team, which began as PatientCrossroads, has years of expertise that shapes our approach. We have worked with the National Institutes of Health (NIH), the Patient-Centered Outcomes Research Institute (PCORI), numerous biopharma companies, and scores of advocacy organizations.

Storing patient data in one place benefits patients, researchers, and biopharmaceutical companies who are working to help find new and better treatments for disease.

For patients

PINs amplify the voice of patients to optimize the search for better treatments. Patients can securely contribute data about their personal experience with a disease, learn how others manage similar health journeys, and receive information about the latest research and clinical trial opportunities. Participation is completely voluntary, and Invitae will never share information without permission. Learn more on our patient PIN page.

For biopharmaceutical companies

PINs help researchers and biopharmaceutical companies find better treatments, faster. PINs identify patients with a genetic variant who want to join a clinical trial or help find new treatments. It’s possible to pre-qualify patients for clinical trials, capture clinical data electronically, and build engaged patient communities. Learn more on our biopharma solutions page.

For advocacy

Advocacy organizations are driven to make a difference. We can help. PINs can help members of your community learn how others cope with their disease, connect patients with research and clinical trials, and share their medical data and experience with a global disease community. Learn how Invitae can help your organization reach its mission to improve the lives of patients and families. Learn more on our advocacy partners page.

Join us in our mission to improve healthcare

Patients - Learn more and then join a PIN to securely contribute data about your personal experience with a disease, learn how others manage similar health journeys, and receive information about the latest research and clinical trial opportunities.

Biopharmaceutical companies - Learn more about PINs and then contact us to discuss how PINs can identify qualified patients for rapid recruitment, capture clinical data and patient-reported outcomes, and build engaged patient communities.

Advocacy groups - Join one of our existing PINs or build a new one to organize patients around the world and accelerate the search for new and better treatments in a way that puts patient’s privacy first. Learn more.