Your data, protected.

With Invitae, you own and control your genetic information. 

We’ll never share your identifiable data without your express permission.

  • This includes any information that can be used to identify you, such as your name and date of birth.

  • Note that we may share data with subcontractors (e.g. Salesforce) who support our delivery of services to you. Our subcontractors agree to keep the data we share private.

How we use your de-identified data.

  • De-identified data is information that has been stripped of personal identifiers, such as your name and date of birth, so that it cannot be linked back to you. 

  • Shared de-identified data is a powerful tool for clinical medicine and science that can help:

    • deepen the understanding of genetic conditions

    • speed the development of new treatments

    • lead to cures for a variety of diseases.

  • It’s up to you if you want us to share your de-identified data; simply log into your portal account and set your preferences. Please note that we do share information about each variant (or change) we find with ClinVar, a third party database that maintains information on genetic variants.  

When we say de-identified, we mean it.

  • We take precautions to ensure your de-identified data can’t be linked back to you.

    • We carefully scrub the data we send out to ensure that there are no parts of the data that can be used to identify you.

    • We require the party receiving the data to agree not to attempt to re-identify the data.

We’re dedicated to improving the quality of healthcare through genetics. 

  • Everyone has variations in their DNA. Most of these variations don’t impact health or cause disease, but in some cases, they do. 

  • In order to understand which variations could impact your health or increase your risk of future disease, researchers need access to a large number of patients’ genetic information. Sharing de-identified data makes this possible—and is fundamental to understanding genetics.

  • For that reason, we share de-identified data with ClinVar, a centralized resource managed by the National Center for Biotechnology Information (NCBI) and the National Institutes of Health (NIH).

  • ClinVar is an essential resource that helps researchers uncover links between specific genetic variants and disease. ClinVar entries cannot be traced back to an individual person. See an example ClinVar entry here.