This includes any information that can be used to identify you, such as your name and date of birth.
Note that we may share data with subcontractors (e.g. Salesforce) who support our delivery of services to you. Our subcontractors agree to keep the data we share private.
De-identified data is information that has been stripped of personal identifiers, such as your name and date of birth, so that it cannot be linked back to you.
Shared de-identified data is a powerful tool for clinical medicine and science that can help:
deepen the understanding of genetic conditions
speed the development of new treatments
lead to cures for a variety of diseases.
It’s up to you if you want us to share your de-identified data; simply log into your portal account and set your preferences. Please note that we do share information about each variant (or change) we find with ClinVar, a third party database that maintains information on genetic variants.
We take precautions to ensure your de-identified data can’t be linked back to you.
We carefully scrub the data we send out to ensure that there are no parts of the data that can be used to identify you.
We require the party receiving the data to agree not to attempt to re-identify the data.
Everyone has variations in their DNA. Most of these variations don’t impact health or cause disease, but in some cases, they do.
In order to understand which variations could impact your health or increase your risk of future disease, researchers need access to a large number of patients’ genetic information. Sharing de-identified data makes this possible—and is fundamental to understanding genetics.
For that reason, we share de-identified data with ClinVar, a centralized resource managed by the National Center for Biotechnology Information (NCBI) and the National Institutes of Health (NIH).
ClinVar is an essential resource that helps researchers uncover links between specific genetic variants and disease. ClinVar entries cannot be traced back to an individual person. See an example ClinVar entry here.
If you have any questions about Invitae’s dedication to protecting your data, please read our more detailed privacy practices or contact us at privacy@invitae.com.
Estimate your out-of-pocket cost for Invitae tests related to a personal or family history of breast, ovarian, colorectal, or uterine cancer.
The amount shown above is an estimate of your out-of-pocket cost based upon the information you entered about your health insurance coverage. It is not a confirmation that the test has been authorized by your insurance provider. Your final cost may vary based upon your health plan design, deductible, co-insurance, and out-of-pocket limits. Learn More >
As part of Invitae’s dedication to making high-quality genetic testing affordable and accessible, we also offer a patient pre-pay option of $250. Learn More >
We could not determine an out-of-pocket estimate. Please contact us for assistance.